What is Crohn's disease?
It is one of the inflammatory bowel diseases (the
others include ulcerative colitis and irritable bowel syndrome). It is a
chronic disease for which there is no cure at present.
Crohns usually occurs in the small intestine, but is
not limited to that area. It can occur anywhere in the digestive tract. It
is not contagious, but it is estimated that over 500,000 people have the
condition.
With Crohn's Disease, teen or child or adult, it doesn't
matter, they all go through many highs and lows depending on whether they
are having a flare up or are in remission. The flare-ups, too, can have
different severities. From minor to a full blown flare-up.
Anastacia has contracted this disease when she was 13.
Here's how:
When
she was 13, she was lying down watching TV one day when she felt a lump in her
abdomen. 'I thought it was food. It felt like a ball and I could move it, but I
didn't think it was anything to worry about,' she says.
'But it stayed there for a few days, and that's when I told
my mother. I went for tests and my white blood cell count was very high.'
At first doctors thought it might be cancer and conducted
an exploratory operation. 'They knew they had to find out what this mass was.
When they opened me up they found a lot of disease in there,' says Anastacia.
In fact, she had Crohn's disease, an inflammatory bowel
condition that causes a range of distressing symptoms. She says: 'The doctors
took out a mass the size of a grapefruit, then they took out lymph nodes, and
some of the intestine. They sewed me back up with the scar I have on my tummy.'
lowers the waist-band of her denim skirt to reveal a 4in
gash. 'I hated that scar for a long time,' she says. 'It was the only thing that
bothered me about the disease - I thought they'd ruined my life. They'd given me
a big scar and no guy would ever want to touch me and love me - or that was
pretty much what I thought.'
Obsessed with this disfigurement, she otherwise ignored her
medical condition, although the steroid drugs she took made her gain 21/2st.
Then when she was 19, she embarked on a fruit and fibre diet after a producer
told her she was too large.
'With my disease, that's like eating glass
because it was all fibre. I had no idea what I was doing to myself. I hadn't had
a problem with my stomach for years and I was sure the doctors had got it wrong.
'Then it hit me. I got the most terrible,
excruciating pains in my stomach. My intestines collapsed and I had to be fed
through a tube directly into one of the large veins in my chest.
'I was on a very high dose of liquid steroids, my hair got
thin and my skin broke out. I gained a lot of weight immediately and I had a
moon face.'
Not surprisingly she became depressed, until she looked at
it in a different way. 'I learned not to be vain.
Your outer shell is not that important - your spirit and
your heart mean the most,' she says.
She also learned to handle her disease. 'I decided I needed
to face my illness. I began to understand what having it would mean for the rest
of my life.
'Crohn's is an intestinal
disorder and it is incurable. A bad attack can kill you. Your abdomen becomes
inflamed and there are lots of nasty things - diarrhoea, vomiting, fevers,
cramps and anal bleeding - to deal
with.'
Anastacia now avoids anything that might spark off her
Crohn's. 'I don't drink unless I've seen the schedule and know what is coming up
work-wise - and even then I would only have a couple of glasses of wine.
'As for drugs, I would never do that. I'm a milk and
cookies rock star and proud of it.'
Most importantly, she makes every effort to minimise stress
because although Crohn's isn't caused by it, in her experience it is certainly
affected by it.
'Bottling things up fuels the symptoms of
Crohn's. I have had to learn not to be frightened of feelings. You might think
it strange that I still wanted to fulfil my ambition of becoming a singer,
trying to make it in a business that is so difficult and so pressurised,' she
says.
'But to me that wasn't an issue, because I had
changed the way I thought about things. I felt at ease with my emotions. I didn't
let myself get wound up when I wasn't making it as a singer.
'I gave myself time and if I got rejected I allowed myself
to get upset and then moved on, and continued with other work - as a waitress
and a hairdresser. When I finally got offered a record deal two years ago, I was
so happy I screamed.'
Doctors have told her that the disease could affect her
fertility, but Anastacia has dealt with this in a characteristically positive
manner.
'I can't guarantee that I will ever be able to have a child.
If it comes down to it, I will adopt. That is so much bigger than anything you
could ever achieve in the music business.'
Since her rise to fame, she has become friends with David
and Victoria Beckham, and becomes effusive at the mention of their relationship.
'I look at them and think: "See, that's the way it should
be.î You should have a family, you should work hard and you should love your
partner. That's my fantasy.
'My illness has changed me in so many ways. It
affects everything from my health to my job to my relationships. I recently
broke up from a boyfriend, which was tough, but I'm OK.
'What is seen as a curse for some is a gift for me
because it has helped me to discover who I really am.